The Starfish Project

The combined effort of our whole family.

Posts Tagged ‘laryngitis

Update on Mom (4/24/09)

leave a comment »

Well, it’s been a little bit of a rough week for us.  Mom had a follow-up appointment with Dr. Randall Porter, her neurosurgeon, on Monday morning.  The news wasn’t what we were hoping for.  The MRI she had last week has revealed three new lesions on her brain.  The good news is that the large lesion (and the two spots) that were treated in February with Gamma Knife are gone.  So, that’s really great news.  But, the fact that there are new ones is disappointing.

Mom is scheduled for another Gamma Knife treatment next Tuesday (4/28/09) at Barrow Neurological Institute’s Gamma Knife Center.  We believe this treatment will be much easier for Mom for a couple of reasons:

 (1) Her back is much better now and she is able to sit up without pain.  When she had the Gamma Knife treatment back in February she wasn’t able to sit up the whole time and she had to rest her head on the back of the halo (which hurt and caused the back screws to hurt quite a bit);

(2) She was a last-minute addition to the Gamma Knife schedule last time and we were there from 5:00 AM until after 6:00 PM.  They were wonderful to get her added to the Gamma Knife schedule that day and we’re very grateful for it.  But, this time, she’s not a last-minute addition, so we should get out of there quite a bit faster; and, finally,

(3) She’s not going to be admitted to St. Joseph’s Hospital after the procedure (like last time), so we should be home for dinner.  It’s an out-patient procedure and we’re really believing she’s going to have the best possible experience there this time.

Please keep Mom in your prayers as she goes back for another round of Gamma Knife next Tuesday.

On Monday morning, we’re heading over to the local hospital here in Mesa for her to have a chest CT scan to see how her lungs are doing.  We’re believing for good news on that front.  I’ll post when we know anything.

Today I filled out all the paperwork for Mom to be admitted to a study for the Poly-MVA.  There is information here on the blog (it has its own category) if you’re interested in more info on it.  Hopefully, we’ll hear something back pretty soon from them so she can get started on that right away.  The information we’ve read so far is very encouraging when Poly-MVA has been used on cancer patients.

The thing we’re hoping for most is that Mom will get some more energy once she starts taking it.  She’s been feeling pretty drained and it’s difficult to recover when you’re tired all the time.

I’m taking both Mom and Dad to their primary care physician tomorrow for an initial consultation with their new doctor.  We’ve seen one of the other doctors there in the office a couple of times, but we haven’t actually met their official primary care physician yet.  So, we’re looking forward to that.

Mom’s thumb is still pretty jacked up.  She end is still black, but it’s not weepy or weird.  Her Naturopathic Doctor thinks it’s doing well.  We’ll be setting up an appointment for her to see a hand specialist very soon so we can get it checked out.

Well, I think that’s about it for the moment.  As always, we appreciate all your prayers and kind thoughts for Mom.  It’s difficult for her to talk on the phone right now because she’s having some problems with laryngitis – which we’re getting checked out by an ear, nose, and throat specialist ASAP.  So, email works well for her.  We can print them out and read them to her.

I’ll post more info when I have any new info.

Until next time …

Tracey

Advertisements

Written by Tracey

April 24, 2009 at 1:17 am