The Starfish Project

The combined effort of our whole family.

Posts Tagged ‘brain met

Poly-MVA Testimonial for Lung Cancer

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happydance3kName: John Flint
7300 Bear Ridge Rd.
N. Tonawanda, NY 14120
Date: July 23, 2000
Diagnosis: Lung Cancer
Email:
eileent1@netzero.netUPDATES: April 12, 2001 – December 3, 2003 – July 6, 2004

On September 1997 I started having difficulties with reading comprehension, I could read a sentence but could not understand what it meant. Within a week I also developed strong headaches. My GP made an appointment to see a neurologist which he scheduled for 2 months in the future and suggested I continue to take aspirin.
That same weekend my headaches were so bad that I went to the emergency room of the local hospital.

After a very short examination the doctor concluded that I had a bad set of headaches but “one thing you do not have are brain tumors”. I felt reassured that I did not have anything serious and went home. As the headaches kept getting worse and I became more and more disoriented, I managed to obtain an appointment with a young neurologist. After a ten minute examination, she sent me for a cat-scan and within a few hours she gave us the bad news that I had two large brain tumors. She also suggested that the brain tumors were probably not primary and that they probably had metastasised from somewhere else.

 

 

That day our life changed forever. The quick action of that neurologist might be one reason that I am still alive.
Within a few days they identified the primary as a large lung tumor, non small cell carcinoma, that had spread to the brain. I was rated as stage 4. During the next few weeks I saw 3 different oncologists, they all gave me a prognosis of 3 months to a year at most. All of them suggested I get my affairs in order. They also stated that it would be a waste of time and money to try any alternative methods.

 

 

I started full brain radiation which was followed after several weeks of recovery by chemotherapy. This lasted almost six months until the oncologist refused to give me any more treatments as the chemo was having many negative side effects on my system. At that stage the doctors stated that they had nothing more to offer and that I should enjoy life as much as possible. We felt we were left on our own, like abandoned, with no one to help us.

 

 

During the long months of chemotherapy, my wife had started looking at possible alternative treatments since my doctors did not seem to think that I had much chance. She called survivors to see what they were doing, cancer organizations to see what they could offer, read books, looked at web pages for the latest that kept on recurring among her various contacts. As we spent more time researching these products we got a clearer understanding of why they worked. Some were being tested in various research laboratories and showed definite signs of reducing cancer. Others dealt with helping the immune system and maintaining the body at its peak condition.
The different cancer fighting products we found attack tumors in different ways. Some prevented the tumors from growing the necessary blood vessels required for growth, these are known as angiogenesis inhibitors. Others attacked the protein membrane that the tumors use to shield themselves from the immune system. Others have chemicals that are necessary for some cancers to grow but also contain chemicals that are poisonous to the tumor – Poly MVA.

 

Some prevent the small new tumors from attaching themselves and therefore cannot grow. I take them all. To date, most of the data show that no single chemical is 100% effective and that taking more than one product increases chances of survival. Some are probably more effective than others, none of them are harmful. The cost of many of these products is relatively small.
It has been 3 years since I was first diagnosed. To date I have no sign of any visible tumors in the brain or lung. I even have some hair back. We would be glad to send you a specific list of the products I am taking. Also we are always happy to talk to anyone looking for help. We were not able to get help from the medical profession so we took the initiative to do something ourselves. If we can share this with other people, we are happy to do so. Please feel free to telephone e-mail us at jflint@itcanada.com.

 

John Flint
UPDATE: April 12-2001

 


Hi Tim,
We have written a short paragraph below with the latest on Johns health. As you see, he is still doing very well.

 

 

We receive at least 5 calls or emails a week asking about poly and the other products that John is taking. We are happy to give moral support and provide any information that we have.
Best wishes to you and your father
Judy and John
John is doing great. As of April 2001, recent CAT scans could not detect any sign of his earlier brain or lung tumors. He is still taking all of his supplements, including POLY MVA, although reduced to a maintenance level. He also has maintained a diet of at least 7-8 fruits, vegetables daily balanced with protein.

 

 

 

 
 
UPDATE: December 3, 2003Hi Tim,

We thought we would let you know that John is still doing great and we are into our 3rd year of cruising on our sailboat. This winter we are off to Belize. John is still following his protocol including polymva.

 

 

We wish you and your father the best for the holiday season. Please give him our regards.
Judy and John Flint
 
 

 

 
UPDATE: July 6, 2004Hi TimAnother 6 months has passed and John still enjoys good health. My mother has been receiving at least 2 -3 requests for John’s “protocol” each week. She is happy to forward it to anyone that requests it. John also emails messages to anyone that would like more information. John is still taking Poly MVA

as well as other supplements and continues to eat 7-9 fruits and vegetables per day.
Best Wishes,
John and Judy
 
 

 

Source:  PolyMVA Survivors.com

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Update on Mom (4/24/09)

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Well, it’s been a little bit of a rough week for us.  Mom had a follow-up appointment with Dr. Randall Porter, her neurosurgeon, on Monday morning.  The news wasn’t what we were hoping for.  The MRI she had last week has revealed three new lesions on her brain.  The good news is that the large lesion (and the two spots) that were treated in February with Gamma Knife are gone.  So, that’s really great news.  But, the fact that there are new ones is disappointing.

Mom is scheduled for another Gamma Knife treatment next Tuesday (4/28/09) at Barrow Neurological Institute’s Gamma Knife Center.  We believe this treatment will be much easier for Mom for a couple of reasons:

 (1) Her back is much better now and she is able to sit up without pain.  When she had the Gamma Knife treatment back in February she wasn’t able to sit up the whole time and she had to rest her head on the back of the halo (which hurt and caused the back screws to hurt quite a bit);

(2) She was a last-minute addition to the Gamma Knife schedule last time and we were there from 5:00 AM until after 6:00 PM.  They were wonderful to get her added to the Gamma Knife schedule that day and we’re very grateful for it.  But, this time, she’s not a last-minute addition, so we should get out of there quite a bit faster; and, finally,

(3) She’s not going to be admitted to St. Joseph’s Hospital after the procedure (like last time), so we should be home for dinner.  It’s an out-patient procedure and we’re really believing she’s going to have the best possible experience there this time.

Please keep Mom in your prayers as she goes back for another round of Gamma Knife next Tuesday.

On Monday morning, we’re heading over to the local hospital here in Mesa for her to have a chest CT scan to see how her lungs are doing.  We’re believing for good news on that front.  I’ll post when we know anything.

Today I filled out all the paperwork for Mom to be admitted to a study for the Poly-MVA.  There is information here on the blog (it has its own category) if you’re interested in more info on it.  Hopefully, we’ll hear something back pretty soon from them so she can get started on that right away.  The information we’ve read so far is very encouraging when Poly-MVA has been used on cancer patients.

The thing we’re hoping for most is that Mom will get some more energy once she starts taking it.  She’s been feeling pretty drained and it’s difficult to recover when you’re tired all the time.

I’m taking both Mom and Dad to their primary care physician tomorrow for an initial consultation with their new doctor.  We’ve seen one of the other doctors there in the office a couple of times, but we haven’t actually met their official primary care physician yet.  So, we’re looking forward to that.

Mom’s thumb is still pretty jacked up.  She end is still black, but it’s not weepy or weird.  Her Naturopathic Doctor thinks it’s doing well.  We’ll be setting up an appointment for her to see a hand specialist very soon so we can get it checked out.

Well, I think that’s about it for the moment.  As always, we appreciate all your prayers and kind thoughts for Mom.  It’s difficult for her to talk on the phone right now because she’s having some problems with laryngitis – which we’re getting checked out by an ear, nose, and throat specialist ASAP.  So, email works well for her.  We can print them out and read them to her.

I’ll post more info when I have any new info.

Until next time …

Tracey

Written by Tracey

April 24, 2009 at 1:17 am

Update on Mom (12/29/08)

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Mom is doing so much better now.  The Decadron steriods have been working well to relieve the inflammation on her brain and with three visits from the physical therapist Mom is just about fully recovered from the numbness and weakness in her left arm and leg.

She is no longer using the wheelchair and she has regained most of the movement in her left arm and hand.  She even carried a cup of tea into the livingroom yesterday from the kitchen.  She’s working on her typing skills and they are slowly returning as she practices each day.

This has been a scary chapter for our family – as we saw Mom suddenly become almost completely incapacitated in such a short time.  But, thankfully, her new Naturopath advised us to move quickly with a neurologist and with the steriods and it turned out to be advice that quite possibly saved her left side motor functions.  Had the pressure been on her brain for much longer everyone agrees that the possibility for permanent damage was likely.  So, we’re just thankful and rejoicing that this is one bridge we won’t need to cross.

Our family had a wonderful Christmas at Mom and Dad’s house.  We didn’t have the traditional Christmas feast this year because Mom can’t have so many of those foods.  So, we opted for homemade Mexican food this year.  We had fresh chicken Posole (a soup with red chile sauce, hominy, chopped green chiles, onion, garlic and oregano – and garnished with fresh chopped cabbage, diced avocado, green onion slices, and lime juice).  It was delicious.  We also made homemade red chicken and green chicken tamales too.  They were fabulous.  We prepared the corn masa ourselves and the ladies sat around the table making tamales on Christmas.  They steamed for an hour and we sat down for a delicious Christmas meal of tamales, organic refried beans, and organic Spanish rice.  It was all very tasty.

Mom celebrated her birthday on Friday.  She looked very cute for her birthday celebration.  I took some pictures at Christmas and on her birthday.  However, I left my camera at Mom and Dad’s house, so I can’t post any of the photos until I get my camera back.

Our family is believing that 2009 is going to be the best year we’ve ever had.  There are so many promises and answers to prayer lurking right around the corner and we believe 2009 will be the year we’ll see them come to pass.

Again, thank you all so much for your prayers for Mom.  The past month has certainly been our most difficult one yet.  However, currently, Mom is doing the best she’s ever done.  We’re still waiting to  hear back from Barrow’s Neurological Institute about Mom’s Gamma Knife treatment.  I’m sure the holidays have created some delays as people often take extra time off work.  But, I’m hoping we’ll hear something this week so Mom can start moving forward with this treatment.

Written by Tracey

December 29, 2008 at 6:39 am

Update on Mom (12/16/08)

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Well, we’ve had a whirlwind couple of days – but, things have calmed down enough for me to sit down and update you all.  As you know, Mom had an MRI on Friday (12/12/08) of her brain at the recommendation of her neurologist, Dr. Kumar.  He felt pretty certain there was metastic activity in her brain based on the type of issues whe was experiencing in her left arm and leg.

So, on Friday morning Mom went to the lab and had a blood draw and then at 12:30 PM she had an open MRI of her brain.  Since she had such a tough time with the brain MRI back in August, we pushed for an open MRI and the neurologist gave her a prescription for one Valium to help with any anxiety.  She did really, really well with it and the MRI tech at SimonMed was really wonderful – allowing Dad to be back there with her to hold her hand.

She felt great when she came out and we went home to wait for the results.  We were only home about an hour and 20 minutes before the neurologist called to tell us that the MRI confirmed his suspicions.  Mom has a 2 cm brain lesion in the right upper part of her brain that’s putting pressure on the part of her brain that controls her left side motor functions.  He told us that we needed to get her started on Decatron (a steriod) right away to relieve the pressure on her brain.  He said the best place for Mom to be was in the hospital.  So, we got Mom’s things together and took  her to Banner Baywood Hospital around 4:00 PM.

The people at the hospital were all very nice and took excellent care of Mom.  Dr. Kumar was consulted by the ER doctor and she was started on the Decatron.  They gave it to her through her IV line with a push.  Within an hour or so of receiving it, she was already able to lift her left leg up and down.  I guess it works pretty quickly to relieve inflammation – so we saw results with it right away.

Mom consulted with an oncologist while we were there and he was a little irritated that she was seeing a naturopathic doctor.  He couldn’t sell his full brain radiation to Mom because we had already done the preliminary research on Gamma Knife radiation.  So, he agreed to give her a referral for that – which is done in Phoenix at the Barrows Neurological Institute.

Mom was discharged Sunday afternoon.  The Decatron has continued to relieve inflammation and each day since Friday she’s had more and more movement return to her left side.

We are now in the process of getting her set up for a consultation with Barrows Neurological Institute.  Currently, they are reviewing her records to determine if she’s a good candidate for the Gamme Knife radio surgery.  This is a non-invasive procedure that shoots a highly targeted beam of radiation into the lesion.  The surrounding healthy tissue is unaffected and there are none of the typical side-effects of radiation.  There is no hair loss, no fatigue, no burns, etc. 

From all the research I’ve done and from talking to Mom’s naturopathic doctor, there aren’t any alternative treatments we can do that will work quickly enough to reduce the inflammation on her brain.  Time is of the essence with this situation because we need to get that inflammation down so she can get her movement restored.  The longer the tumor presses on her brain, the more chance for permanent damage to her left side.

From everything I’ve read, Mom seems like the perfect candidate for the Gamma Knife radio surgery.  The best outcomes occur with patients who have brain metastasis that are under 3 cm in size.  Mom’s met is only 2 cm – and Dr. Porter told us yesterday that with all the steriods she’s been taking to reduce inflammation, it’s likely to be even smaller now (not that it’s shrunk – but, that it was likely swollen.  And, with the swelling reduced, the size will be reduced).  Gamma Knife radio surgery has a 90% success rate in tumor control – which is very exciting to us.

Mom is in great spirits.  She hasn’t lost her sense of humor and she and Dad laugh a lot together.  Dad has been a real pillar for her and he’s the best kind of husband any woman could ever hope for.  We have a day off from doctor appointments today – so, we’re all trying to rest up and catch our breath.  She sees Dr. Porter tomorrow for another high dose Vitamin C IV, and she sees her neurologist, Dr. Kumar, on Thursday for a follow-up.  We expect to hear back from Barrows Neurological Institute by the end of the week for Mom’s first step toward her Gamma Knife radio surgery.

Thank you all so much for your prayers and positive thoughts.  We can certainly feel it.  Things seem to just fall into place for us as we continue along this journey.  God is good and we know this part of the road will be just one part of Mom’s story.  This is the part of the story where the protagonist is up in a tree and the antagonist is throwing rocks.  Mom is doing a great job of dodging the rocks.  🙂

Written by Tracey

December 16, 2008 at 1:26 pm