The Starfish Project

The combined effort of our whole family.

Archive for April 2009

Poly-MVA Testimonial for Lung Cancer

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happydance3kName: John Flint
7300 Bear Ridge Rd.
N. Tonawanda, NY 14120
Date: July 23, 2000
Diagnosis: Lung Cancer
Email:
eileent1@netzero.netUPDATES: April 12, 2001 – December 3, 2003 – July 6, 2004

On September 1997 I started having difficulties with reading comprehension, I could read a sentence but could not understand what it meant. Within a week I also developed strong headaches. My GP made an appointment to see a neurologist which he scheduled for 2 months in the future and suggested I continue to take aspirin.
That same weekend my headaches were so bad that I went to the emergency room of the local hospital.

After a very short examination the doctor concluded that I had a bad set of headaches but “one thing you do not have are brain tumors”. I felt reassured that I did not have anything serious and went home. As the headaches kept getting worse and I became more and more disoriented, I managed to obtain an appointment with a young neurologist. After a ten minute examination, she sent me for a cat-scan and within a few hours she gave us the bad news that I had two large brain tumors. She also suggested that the brain tumors were probably not primary and that they probably had metastasised from somewhere else.

 

 

That day our life changed forever. The quick action of that neurologist might be one reason that I am still alive.
Within a few days they identified the primary as a large lung tumor, non small cell carcinoma, that had spread to the brain. I was rated as stage 4. During the next few weeks I saw 3 different oncologists, they all gave me a prognosis of 3 months to a year at most. All of them suggested I get my affairs in order. They also stated that it would be a waste of time and money to try any alternative methods.

 

 

I started full brain radiation which was followed after several weeks of recovery by chemotherapy. This lasted almost six months until the oncologist refused to give me any more treatments as the chemo was having many negative side effects on my system. At that stage the doctors stated that they had nothing more to offer and that I should enjoy life as much as possible. We felt we were left on our own, like abandoned, with no one to help us.

 

 

During the long months of chemotherapy, my wife had started looking at possible alternative treatments since my doctors did not seem to think that I had much chance. She called survivors to see what they were doing, cancer organizations to see what they could offer, read books, looked at web pages for the latest that kept on recurring among her various contacts. As we spent more time researching these products we got a clearer understanding of why they worked. Some were being tested in various research laboratories and showed definite signs of reducing cancer. Others dealt with helping the immune system and maintaining the body at its peak condition.
The different cancer fighting products we found attack tumors in different ways. Some prevented the tumors from growing the necessary blood vessels required for growth, these are known as angiogenesis inhibitors. Others attacked the protein membrane that the tumors use to shield themselves from the immune system. Others have chemicals that are necessary for some cancers to grow but also contain chemicals that are poisonous to the tumor – Poly MVA.

 

Some prevent the small new tumors from attaching themselves and therefore cannot grow. I take them all. To date, most of the data show that no single chemical is 100% effective and that taking more than one product increases chances of survival. Some are probably more effective than others, none of them are harmful. The cost of many of these products is relatively small.
It has been 3 years since I was first diagnosed. To date I have no sign of any visible tumors in the brain or lung. I even have some hair back. We would be glad to send you a specific list of the products I am taking. Also we are always happy to talk to anyone looking for help. We were not able to get help from the medical profession so we took the initiative to do something ourselves. If we can share this with other people, we are happy to do so. Please feel free to telephone e-mail us at jflint@itcanada.com.

 

John Flint
UPDATE: April 12-2001

 


Hi Tim,
We have written a short paragraph below with the latest on Johns health. As you see, he is still doing very well.

 

 

We receive at least 5 calls or emails a week asking about poly and the other products that John is taking. We are happy to give moral support and provide any information that we have.
Best wishes to you and your father
Judy and John
John is doing great. As of April 2001, recent CAT scans could not detect any sign of his earlier brain or lung tumors. He is still taking all of his supplements, including POLY MVA, although reduced to a maintenance level. He also has maintained a diet of at least 7-8 fruits, vegetables daily balanced with protein.

 

 

 

 
 
UPDATE: December 3, 2003Hi Tim,

We thought we would let you know that John is still doing great and we are into our 3rd year of cruising on our sailboat. This winter we are off to Belize. John is still following his protocol including polymva.

 

 

We wish you and your father the best for the holiday season. Please give him our regards.
Judy and John Flint
 
 

 

 
UPDATE: July 6, 2004Hi TimAnother 6 months has passed and John still enjoys good health. My mother has been receiving at least 2 -3 requests for John’s “protocol” each week. She is happy to forward it to anyone that requests it. John also emails messages to anyone that would like more information. John is still taking Poly MVA

as well as other supplements and continues to eat 7-9 fruits and vegetables per day.
Best Wishes,
John and Judy
 
 

 

Source:  PolyMVA Survivors.com

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Update on Mom (4/24/09)

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Well, it’s been a little bit of a rough week for us.  Mom had a follow-up appointment with Dr. Randall Porter, her neurosurgeon, on Monday morning.  The news wasn’t what we were hoping for.  The MRI she had last week has revealed three new lesions on her brain.  The good news is that the large lesion (and the two spots) that were treated in February with Gamma Knife are gone.  So, that’s really great news.  But, the fact that there are new ones is disappointing.

Mom is scheduled for another Gamma Knife treatment next Tuesday (4/28/09) at Barrow Neurological Institute’s Gamma Knife Center.  We believe this treatment will be much easier for Mom for a couple of reasons:

 (1) Her back is much better now and she is able to sit up without pain.  When she had the Gamma Knife treatment back in February she wasn’t able to sit up the whole time and she had to rest her head on the back of the halo (which hurt and caused the back screws to hurt quite a bit);

(2) She was a last-minute addition to the Gamma Knife schedule last time and we were there from 5:00 AM until after 6:00 PM.  They were wonderful to get her added to the Gamma Knife schedule that day and we’re very grateful for it.  But, this time, she’s not a last-minute addition, so we should get out of there quite a bit faster; and, finally,

(3) She’s not going to be admitted to St. Joseph’s Hospital after the procedure (like last time), so we should be home for dinner.  It’s an out-patient procedure and we’re really believing she’s going to have the best possible experience there this time.

Please keep Mom in your prayers as she goes back for another round of Gamma Knife next Tuesday.

On Monday morning, we’re heading over to the local hospital here in Mesa for her to have a chest CT scan to see how her lungs are doing.  We’re believing for good news on that front.  I’ll post when we know anything.

Today I filled out all the paperwork for Mom to be admitted to a study for the Poly-MVA.  There is information here on the blog (it has its own category) if you’re interested in more info on it.  Hopefully, we’ll hear something back pretty soon from them so she can get started on that right away.  The information we’ve read so far is very encouraging when Poly-MVA has been used on cancer patients.

The thing we’re hoping for most is that Mom will get some more energy once she starts taking it.  She’s been feeling pretty drained and it’s difficult to recover when you’re tired all the time.

I’m taking both Mom and Dad to their primary care physician tomorrow for an initial consultation with their new doctor.  We’ve seen one of the other doctors there in the office a couple of times, but we haven’t actually met their official primary care physician yet.  So, we’re looking forward to that.

Mom’s thumb is still pretty jacked up.  She end is still black, but it’s not weepy or weird.  Her Naturopathic Doctor thinks it’s doing well.  We’ll be setting up an appointment for her to see a hand specialist very soon so we can get it checked out.

Well, I think that’s about it for the moment.  As always, we appreciate all your prayers and kind thoughts for Mom.  It’s difficult for her to talk on the phone right now because she’s having some problems with laryngitis – which we’re getting checked out by an ear, nose, and throat specialist ASAP.  So, email works well for her.  We can print them out and read them to her.

I’ll post more info when I have any new info.

Until next time …

Tracey

Written by Tracey

April 24, 2009 at 1:17 am

Update on Mom (4/14/09)

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Well, it’s been over a month since I updated the blog.  It’s been a little crazy busy for all of us, but I do apologize.

Dad and I took Mom for an MRI appointment today at SimonMed in Mesa for a scan of her brain and a CT of her chest.  We took her in the Towncar and we hadn’t used it for her in a long time.  But, she got in and out of it just fine.  So, we’re so happy we have more options for her.  Previously, it had been a little too low for her to get in and out of.  But, she didn’t have any issues today.

In fact, we didn’t even need the wheelchair at all today.  She used her walker and walked inside.  And, she used the walker to come outside after her appointment.

She had the MRI of her brain.  It was an open MRI, but she said it was still very loud and annoying.  She liked the last one better — but, she did get a Valium for that one.  Next time, we’ll make sure we give her one before she has another one.

When they got ready to do her CT scan, they saw in her paperwork that she has a sensitivity to iodine.  I didn’t realize that they have to do a contrast dye for the CT scan.  She had one at St. Joseph’s back in January and I don’t remember them giving her a contrast dye.  But, I guess they did.  Anyway, they said they weren’t aware of her iodine allergy and didn’t feel comfortable doing the CT scan without contrast (because they wouldn’t be able to see much).  They said typically the patient is given a preventative treatment of prednisone and benadryl a few hours before the CT scan to make sure they don’t have a reaction to the iodine.

So, unfortunately, we left today without getting the chest CT done.  We have to reschedule to  have it done at the hospital – where they are much more equipped to handle this sort of thing with her iodine allergy in case she has a reaction.

Mom is still having trouble with laryngitis.  It comes and goes – but, seems to be more pronounced.  That’s next on the list of things to have checked out by her primary care physician next week.  It could be a virus, a fungus, or a myriad of other things.  We will probably get a referral for an ear, nose and throat specialist and have them take a look at it.  I know it’s bugging Mom a lot that she can’t communicate very well.

Mom is much stronger than she was when I last posted.  It’s been a slow journey back for her, but we finally feel like she’s on the other side of these issues.  She’s not using the wheelchair at home at all — and hasn’t for a long time now.  She had only been using it for her twice weekly appointments with Dr. Porter since it’s quite a long way from the parking lot to his office.

I’ll try to snap some current pics of her when I see her next so you can see how great she looks!

Until next time …

Tracey

Written by Tracey

April 15, 2009 at 4:13 am